14. The pain is always there Yes No 15. I feel I miss out on a lot Yes No 16. I fnd it diffcult to wash my hair Yes No 17. My condition gets me down Yes No 18. I worry about letting people down Yes No Each statement on the ASQoL is given a score of “1” or “0”. A score of “1” is given where the item is affrmed, indicating adverse QoL. All item scores are summed to give a total score or index. Scores can range from 0 (good QoL) to 18 (poor QoL). Cases with more than three missing responses (ie more than 20%) cannot be allocated a total score. For cases with between one and three missing responses, the total score is calculated as follows: T=18x/18-m where: T is the total score, x is the total score for the items affrmed and m is the number of missing items. ref: Doward LC et al. Development of the ASQoL: a quality of life instrument specifc to ankylosing spondylitis. Ann Rheum Dis 2003;62:20–26. Ankylosing Spondylitis Quality of Life (ASQoL) (continued) THANK YOU FOR ANSWERING THIS QUESTIONNAIRE Appendix 2: Note on Scoring the ASQoL 51
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